Maine Coalition to Fight Prostate Cancer

To make arrangements for a speaker for your group contact the individual speaker or Jim Ervin at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Bob Beane

Prostate cancer history:

• Diagnosis in April of 2008, after the accidental finding of lumps on my Prostate during a routine exam, for an unrelated issue, in Feb.. 2008. My P.S.A. count was less than 1.0. My diagnosis is a Gleason 9.
• My treatment option chosen was Brachy high dose radiation beams, followed by 25 low dose external beam treatments, followed by hormone therapy for 3 years. This was later reduced to 2 years.
• My current status is that I am still in hormone treatment until Oct. of 2009.

Experience at speaking about prostate cancer:

• I am an active volunteer with the Cancer Community Center "Buddy to Buddy" program and with the A.C.S. "Ride to Recovery" program.
• I am a member of the So. Portland Prostate Cancer Support Group and the Windham Cancer Support Group.
• I am a retired city fireman and I have always been a fighter. This is just one more fight.

Topics of Interest:

• Cancer awareness education.
• Using Reiki treatments to help reduce the anxiety and emotional turmoil associated with both the diagnosis and the treatment of cancer.

Availability:

Flexible with an ample prior notification

Area of availability:

Southern and South Western Maine. South of a line from Bath thru Augusta - Bethel - to about Gorham, N.H. with a line down the east side of N.H. Rt. 16.

Contact information:

Robert D. Beane
45 Whites Point Rd.
Standish, ME 04084

or George Green This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Doug Clark

Prostate cancer history:

• Diagnosed in Oct. 2007 after 3 biopsies the previous year and a half due to rising PSA.
• Robotic Prostetectomy at Johns Hopkins Hospital Dec. 6th, 2007.

Experience at speaking about prostate cancer:

• Board of directors Maine Coalition to Fight Prostate Cancer
• Chairman and founder of Island Falls Area Prostate Cancer Support Group
• Employed as a central office technician at Fairpoint Communications.

Topics of interest:

• Early detection and effective treatment of prostate cancer
• Trying to reach as many men as possible about the benefits of early detection.
• Expanding my own knowledge about detection and treatment.

Availability:

Week day evenings to fit your schedule. Would like at least a week's
notice.

Area of availability:

Southern Aroostook, Central Aroostook, Northern Penobscot.

Contact information:

Douglas Clark
12 Lougee Lane
Island Falls, Me. 04747
Tel. 463-2266 evenings
557-5641 anytime

or George Green This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Nelson Durand

Prostate cancer history:

• Diagnosed with prostate cancer in 2005 at the age of 62
• Procedure selected was lapriscopic surgery with robotic assist
• Provide support to those recently diagnosed with prostate cancer through American Cancer Society's Man-to-Man Program
• Advisor to Maine Prostate Cancer Coalition

Experience at speaking about prostate cancer:

• Primarily interested in providing information and support to those recently diagnosed  with prostate cancer
• Prostate cancer detection and treatment options
• Improving general knowledge about prostate cancer

Availability:

• Timing flexible with ample notification
• Central Maine Area
• Unavailable in winter and somewhat available but limited in summer

Contact information:

George Green This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Leonard (Buz) Freeman

To make arrangements for this speaker for your group contact George Green This e-mail address is being protected from spambots. You need JavaScript enabled to view it

James O. Ervin

Prostate cancer history:

• Diagnosis in September 2000
• My treatment was radiation and seeds
• My current status is I have very low PSA readings

Experience at speaking about prostate cancer:

• I am a director of Maine Coalition to Fight Prostate Cancer, and I have made speeches to groups of men.

Topics of interest:

• Cancer awareness and early detection

Availability:

Flexible – with advance notification

Area of availability:

Central Maine – Auburn/Lewiston area

Contact information:

James O. Ervin
177 Cook Street
Auburn, Maine
784-2086

or George Green This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Mona Ervin

Prostate cancer history:

Spouse of a prostate cancer survivor since 2000

Experience at speaking about prostate cancer:

I have been interviewed on television, have participated in a panel discussion, and I have spoke to numerous groups throughout Central Maine.

Topics of interest:

Discussing with women the impact of prostate cancer from the woman’s perspective and to let women know that this is a family disease, not a man’s disease.

Availability:

Flexible with advanced notification.

Areas of availability:

Auburn/ Lewiston and surrounding areas.

Contact information:

Mona Ervin
177 cook Street
Auburn, Maine 04210
(207) 784-2086
This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Jon Henry

Prostate cancer history:

Diagnosed in August 2007 after treatment for suspected prostatitis at age of 44.  PSA jumped from 3.48 to 4.00 in two months.
Biopsy showed one core of 12 was positive; Gleason score of 7.
Robotic Prostetectomy at Eastern Maine Medical Center (EMMC) on October 31, 2007. Second tumor found; Gleason = 9. Organ-confined.
PSA undetectable for 18 months now.

Board of directors "Maine Coalition to Fight Prostate Cancer"
Facilitator of Bangor Area Prostate Cancer Support Group at EMMC Employed as Dean of Enrollment Services at University of Maine at Augusta.

Topics of interest:

• Early detection for men in their 40's and ways to gather credible information before making treatment decisions.
• Empowering men and their partners to take charge of the process -- be active not passive!
• Increase public awareness that early detection truly does save lives.
• "Don't die from embarrassment!"
• Role of lifestyle, nutrition and exercise - holistic approach - in preventing recurrence Sexual function recovery - being willing to address an awkward topic and side effect of treatment

Availability:

Week day evenings generally; weekends depending on schedule.  Need at least two weeks' notice.

Area of availability:

Greater Bangor region, Augusta region schedule permitting.

Contact information:

Jonathan H. Henry
85 Kennebec Rd
Hampden, ME 04444
Days:  621-3136, Cell 944-3190
Home:  862-2059
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

George Green gmg6@psu.eduor 

Nelson Leavitt

Prostate cancer history:

• Diagnosed with prostate cancer May 2001 after third PSA/DRE tests at age 60
• Radical (open) prostatectomy in August 2001 with no follow-up treatment necessary

Experience at speaking about prostate cancer:

• Extensive experience speaking to groups of all sizes about the subject of Prostate Cancer
• Extensive experience speaking one-on-one with men who are newly diagnosed with prostate cancer, those with advanced prostate cancer and those with side effects due to treatment of prostate cancer

Topics of interest:

• Educating Maine citizens about early detection and early treatment of prostate cancer

Availability:

• Timing flexible with ample notification, usually 4-6 weeks

Area of availability:

Anywhere, with proper arrangements

Contact information:

Nelson A. Leavitt
Phone: (207) 623-5375 (Leave Message) 
84 Fairview Avenue, Augusta, Maine 04330-5832
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

or George Green This e-mail address is being protected from spambots. You need JavaScript enabled to view it

McGowan, Jim

Prostate cancer history:

• Diagnosed with prostate cancer in 2007 after first PSA test at age 52.
• Had radical (open) prostatectomy in July 2007 with salvage external beam radiation treatment during the winter/spring 2008.
• Steering Committee member of Brunswick-Bath Prostate Support Group
• Employed by the Maine Community College System and work in areas of economic and workforce development, as well as, research and public policy projects.

Experience at speaking about prostate cancer:

• Prostate cancer detection and treatment options
• Dealing with a health crisis
• Improving general knowledge about prostate cancer as well as better patient advocacy

Availability:

Timing flexible with ample notification, usually 4-6 weeks.

Area of availability:

Generally Sagadahoc, Lincoln, Cumberland. York, Androscoggin and Kennebec counties, with other locations in Maine possible with appropriate notice.

Contact information:

Jim McGowan
Phone: (207)767-5210 x4107 (o)  (207)371-2731 (h)
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

or George Green This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Michael Todd

Prostate cancer history:

• I was diagnosed in 2002 at the age of 52 after concerns about frequent need to urinate.  It came as a shock as I was otherwise fit, active and healthy in every way.
• My Primary Care physician discouraged me from having PSA test, but thankfully I insisted on it.  My PSA was 18 and thus my PCa journey began.
• A painful biopsy revealed cancer in several samples with a Gleason Score of 8
• I researched all possible treatment options and eventually chose to have a radical prostatectomy at the Lahey Clinic outside of Boston.
• As I approach the 7th anniversary of treatment I am grateful to have remained cancer-free, though I cope with some of the typical side-effects of surgery.

Experience at speaking about prostate cancer:

• Extensive experience speaking about PCa to groups big and small including public conferences on PCa, men’s groups, church groups, service clubs such as Rotary and for businesses promoting wellness among their employees
• Founder and Facilitator of the Bath/Brunswick Area Prostate Cancer Support Group that has met at Mid Coast Hospital in Brunswick since 2004.  The group recently became an affiliated chapter of Us TOO International
• Advisor to the Maine Coalition to Fight Prostate Cancer
• Visitor for the American Cancer Society’s Man to Man program offering one on one assistance to men who have been recently diagnosed with PCa (and their partners)
• I have done advocacy work for the ACS in Augusta and Portland, Maine as well in Washington, DC at the One Voice conference and at a conference hosted by national advocacy group, Zero
• Honored by the ACS as Honorary Chair of the Brunswick Relay for Life in 2008 and with their Quality of Life Award in 2005.  My support group has sponsored a Relay for Life team for 5 years and has raised over $25,000 for the ACS.
• Co-leader of Men’s Retreats at the F. Holland Day Center for Creativity and Healing in Georgetown, Maine (healing retreats for cancer survivors).
• Have appeared on several television shows about PCa in Maine

Topics of Interest

• Starting and Running a Successful Support Group
• The emotional impact of PCa on men and their partners
• The Importance of Early Detection through Screening
• PCa Impact on Relationships
• Still a Man…Coping with Erectile Dysfunction
• Coping with Incontinence Issues
• Pain-managed biopsies…no need to suffer
• Lymphedema…the little known side effect of PCa treatment
• Alternative/Complimentary Modes of Healthcare for PCa
• Mindfulness Practice for Promoting Health and Quality of Life
• Any and all topics related to PCa Survivorship

Availability:

Timing flexible with ample notification.

Area of availability:

Mid Coast and Southern Maine. Other regions of Maine or New England as needed

Contact information:

Michael Todd
Mid Coast Hospital
123 Medical Center Drive
Brunswick, ME 04011
Phone: Office 207-373-6065; Cell 207-841-5419
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

(Home)
81 Richardson Street
Bath, ME 04530
Phone: 207-443-6229
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Terry Kungel

Information to be posted soon.

Bruce McClenahan

Prostate cancer history:

• Diagnosed with prostate cancer in 2004 at the age of 62 through digital exam, Gleason 6.9
• Radical prostatectomy in 2005 by non-robotic laparoscopic procedure
• Moderate to heavy urinary incontinence after surgery
• Advance sling operation in January 2009 to address incontinence
• PSA currently ranges from undetectable to .1
• Provide support  to other men recently diagnosed with prostate cancer

Experience at speaking about prostate cancer:

• Experience speaking with men recently diagnosed with prostate cancer through the Man-to-Man program
• Experience in speaking with support groups about urinary incontinence options, options for dealing with ED, and detailed experience with the Advance Sling
• Advocating for early detection and informed decision making

Availability:

• Weekday evenings, Monday & Tuesday during day with ample notification
• Central and Southern Maine and other areas as needed

Contact Information:

Bruce McClenahan
2616 US Route 202
Winthrop, Maine  04364
Phone: (207)-623-5961
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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More information about the Speakers' Bureau

To make arrangements for a speaker for your group contact the individual speaker or Jim Ervin at This e-mail address is being protected from spambots. You need JavaScript enabled to view it